Palliative and End of Life Care for Children and Young People

Childrens and young peoples’ palliative care: 

Palliative care for children and young people with life-limiting conditions is an active and total approach to care, from the point of diagnosis or recognition, throughout the child's life, death and beyond. It embraces physical, emotional, social and spiritual elements and focuses on the enhancement of quality of life for the child or young person and support for the family. It includes the management of distressing symptoms, provision of short breaks and care through death and bereavement. (Scottish Children and Young People's Palliative Care Executive Group, 2012)

Useful Links:

The Association for Paediatric Palliative Medicine:  https://www.appm.org.uk/

NHS Tayside Children's Services

Children's Hospices Across Scotland

Knowledge Network: Babies, Children and Young Peoples Palliative Care 

Scottish Childrens and Young Peoples Palliative Care Network (SCYPPN)

Together for short lives

Association for Paediatric Palliative Medicine:   http://www.appm.org.uk/index.html

A Guide to Children's Palliative Care - supporting babies, children and young people with life-limiting and life-threatening conditions and their families: Together for Short Lives (4th Edition, Sept. 2018) -  TfSL-A-Guide-to-Children’s-Palliative-Care-Fourth-Edition-5 (1).pdf